First Meeting on Patient Reported Outcomes in Mental Health
Patient Reported Outcomes and Person Centered Care in Mental Health
Washington D.C., September 28-30, 2012
The Meeting addresses research in PRO assessment and measurement in mental and addictive disorders in the context of person centered and recovery oriented policies. A special track in the meeting will consider severe mental disorders and schizophrenia. The research domains include:
(i) New theoretical, methodological and empirical research on disorder-specific and general PRO instruments and measures regarding items content and psychometrics
(ii) PRO assessment in clinical and general populations. Collection, storage and retrieval of PRO assessment data information over time and the role of IT technology
(iii) Individual vs society perspectives and preferences about health status and interventions, and the role of PRO information in efficacy, effectiveness, comparative effectiveness and cost-effectiveness research
(iv) Co-shared PRO information for co-shared decision making regarding interventions for prevention, treatment, rehabilitation, and person centered care.
(v) Patient’s right of appropriate information and assessment about his/her own PRO and their inclusion in decision making regarding treatment
(vi) Financing of PRO assessment services and use in research and clinical practice
(vii) Role of PRO information in recovery oriented decision making regarding the organization and financing of services and health technologies for mental and addictive disorders.
PATIENT REPORTED OUTCOMES (PRO) – MEDICAL DISEASES AND CONDITIONS
A PRO instrument can be used in medical diseases and conditions to measure the impact of an intervention on one or more aspects of patients’ health status ranging from the purely symptomatic (response of a disturbing experience like pain), to more complex concepts (e.g. ability to carry out abilities of daily living), to extremely complex concepts such as multidimensional quality of life, including physical, psychological, and social components.
Subject areas (not exhaustive):
PRO Measurement
Disorder and condition specific PRO (i.e., Schizophrenia, Bipolar Disorder, Depression, Anxiety, Alcohol Addiction, Drug Addiction)
Overall and General Health Status PRO measures
Content analysis of PRO measures and items
Psychometric analysis of PRO measures
Passively Received Experiences of the disorder and immediate subjective disturbance
Impact of the disorder on subjectively meaningful own school/work, social and recreational activities and on subjectively meaningful life planning
Treatment side-effects, immediate disturbance, impact on subjectively meaningful own school/work, social and recreational activities, and on subjectively meaningful life planning
Subjectively meaningful “Remission” and “Recovery”
Quality of life
Co-morbidities
Psychological impact of psychiatric and medical disorders
Intermediate PRO
Satisfaction with treatment and interventions
Individual and social preferences about condition specific states, general health states, and interventions side-effects
PRO Co-shared Information
Passively received experiences of the disorder and subjective disturbance
PRO symptoms, symptoms trajectory and complications
General Health PRO
Quality of Life PRO
Subjectively meaningful treatment targets and drug treatment side-effects
PRO Co-shared information as co-shared decision-making aid in choices about clinical treatment initiation, refinement and continuation
PRO Co-shared information as co-shared decision-making aid in social interventions
Use of PRO Co-shared Information in Decision Making about Interventions
Clinical and Support Interventions
Preventive services
Outpatient services
Inpatient services
Psychotropic medications
Psychotherapy and Psychological Treatments
Psychosocial treatments
Peer Support
Self-help
Individual, group and social preferences
Social Interventions
Housing
Work
Social Inclusion
Social Security Income and Disability Pensions
Individual, group and social preferences
Right of Access to Information and PRO
Patient’s access to information
Information about disorder-specific and general PROs
Information about efficacy, effectiveness and comparative effectiveness of treatments and interventions on PROs
Patient’s PRO information use in co-shared decision-making
PRO assessment, information, use, storage and retrieval in decision-making and co-shared decision-making about treatment initiation, refinement and continuation.
Right of access to information about PROs and civil rights
Simple and complex levels of own PROs determination and report.
Duties and obligations in person centered PRO information in research and practice
Omission of information about PROs and Negligence
Involuntary treatment commitment policies and practices
Subjective stigma related to disorder, treatment and treatment side-effects
Intentional denial and malingering about PROs
Individual vs society perspectives
Health Economics
Burden of illness
PRO in comparative effectiveness research
PRO in cost-effectiveness and cost-utility research
PRO information, subjective usefulness of interventions and economic behavior
PRO, pricing for pharmaceuticals and value to patients
Financing the right of access to knowledge about PRO information and its use in decision-making
Agency and financing
Self-directed financing of services
Health Policy
Patient’s perspective in mental health policy formulation
Patient’s perspective in the financing and access of interventions for mental and addictive disorders
Person centered and recovery oriented models
INFORMATION
Massimo Moscarelli, MD
International Center of Mental Health Policy and Economics (ICMPE)
Via Daniele Crespi 7
20123 Milano, Italy
E-mail: moscarelli@icmpe.org
FAX +39-02-5810 6901
Website: www.icmpe.org
